Distressed Parents Turn to Crowdfunding to Save Baby Battling Spinal Muscular Atrophy (SMA)

A Comprehensive Approach to Aortic Disease
A Comprehensive Approach to Aortic Disease

Crowdfunding helps Battle Disease

When Zaisha Kaur turned 6 months old, her mother took her to the doctor for a check-up, after observing that she was unable to hold her neck or roll over on her stomach.

She was diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a debilitating disease that primarily affects infants. It is characterized by muscle wasting and progressive loss of motor function, hampering children’s movement, breathing, or swallowing functions.

Struggle for Access to Healthcare

According to medical experts, SMA Type 1 is not just a battle for one family; it is a reflection of the broader issue of access to healthcare for rare and complex diseases in India.

With a travel business that is just returning to normalcy after the COVID-19 downturn, the Singh family has been left with no option but to embark on a medical crowdfunding journey to secure the life-saving treatment for their beloved child.

“When the doctors told us that there is just one drug which will save Zaisha’s life, we immediately decided that we will get it for her, come what may,” said Pawanjot Singh, Zaisha’s father.

The family, facing the overwhelming financial burden of treatment, has found a glimmer of hope through Impact Guru, India’s leading medical crowdfunding platform.

Piyush Jain, Co-Founder and CEO of Impact Guru says, “We are committed to helping families facing medical crises by providing a platform to connect with a community of donors who can contribute to life-saving treatments.

Earlier this year, another child, Kanav Jangra needed one dose of this same injection to beat SMA. Kanav’s father started a crowdfunding campaign with Impact Guru. Around 1.5 lakh people, including noted officials from the government, film and TV personalities, and the general public successfully contributed for the little boy’s treatment.

“I am certainly positive that with the same generosity and unwavering support, we will be able to offer Pawanjot’s baby too a chance at a brighter and healthier future,” he concludes.

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